PSYCHOSOCIAL AND EDUCATIONAL DEVELOPMENT OF INDIVIDUALS WITH FACIAL ANOMALIES

Authors

  • Andrea D. Stephan

DOI:

https://doi.org/10.7322/jhgd.39779

Keywords:

abnormality, cleft lip, health promotion, health education.

Abstract

This study aims at researching the existing scientific literature about psychosocial and educational outcomes of individuais with craniofacial anomalies. It is possible to observe a new trend in the treatment of these individuais, focusing on ali ieveis of complexity, aiming t^l^Ot oniy at functionai and anatomical restoring, but aiso at the development of a healthy person~ in the broader concept of emotional, social and professionai weii-being. To reach this goal. special educational attention, inclusive and propulsive. is necessary, with the involvement of ali professionals in contact with these patients. from health care and educational arcas.

Author Biography

  • Andrea D. Stephan
    Cirurgia-Dentista; Mestranda em Educação pela Pontificia Universidade Católica do Rio Crandc do Sul – PUCRS. Programa de Pós-Graduaçào em Educação; e Secretaria Municipal de Saúde de Porto Alcgre, Unidade Sanitária Farrapos.

References

Andrade D, Angerami ELS. A auto-estima em adolescentes com e sem fissuras de lábio e/ou de palato. Rev Latino-Am Enfermagem. 2001;9(6):37-41.

Berk NW, Cooper ME, Liu Y, Marazita ML. Social anxiety in Chinese adults with oral-facial clefts. Cleft Palate-Craniofacial Journal. 2001;38(2):126-133.

Broder HL. Using psychological assessment and therapeutic strategies to enhance well-being. Cleft Palate-Craniofacial Journal. 2001;38(3):248-254.

Broder HL, Richman LC, Matheson PB. Learning disability, school achievement, and grade retention among children with cleft: a two center study. Cleft Palate-Craniofacial Journal. 1998;15(2):127-131.

Charrle JR, Nunn JH. The oral health of children with clefts of the lip, palate, orboth. Cleft Palate-Craniofacial Journal. 2001;38(5):525-528.

Eiserman W. Unique outcomes and positive contributions associated with facial diference: Expanding research and practice. Cleft Palate-Craniofacial Journal. 2001;38(3):230-244.

Eliason MI, Hardin MA, Olin WH. I actors that influence ratings of facial appearance for children with cleft lip and palate. Cleft Palate-Craniofacial Journal. 1991; 28(2):190-194.

Endriga MC, Kapp-Simon KA. Psychological issues in craniofacial care: state of the art. Cleft Palate-Craniofacial Journal. 1999;36(1):1-11.

HRAC/USP-Centrinho. Ciência e humanizacão de mãos dadas. Bauru, 2003. Disponível em: http://www.centrinho.usp.br/. Acesso em: 18 abr. 2003.

Kelton RW. Racing up to stigma: Workplace and personal strategies. Cleft Palate-Craniofacial Journal. 2001; 38(3):245-247.

Kenealy P, Frude N, Shaw W. Influence of children’s physical attractiveness on teacher expectations. The Journal of Social Psychology. 1988;128(3):373-383.

Marcusson A, Akerlind I, Paulin G. Quality of life in adults with repaired complete cleft lip and palate. Cleft Palate-Craniofacial Journal. 2001;38(4):379-385.

Millard T, Richman LC. Different cleft conditions, facial appearance, and speech: Relationship to psychological variables. Cleft Palate-Craniofacial Journal. 2001;38(1):68-75.

Mosquera JJM. Pós-modernidade, cultura e professorado: uma análise da subjetividade docente. Educação, Porto Alegre: 2000;23(41):31-46.

Mosquera JJM, Stobaus CD. Educação para a saúde. Desafio para socieeladesem mudança. 2ª ed. Porto Alegre: DC Luzatto,1984.

Mosquera JJM, Stobaus CD. Educação, saúde e drogo dependência: uma relação crítica. Educação, Porto Alegre: 2001;24(45):33-48.

Motoyama LCJ, Lino AP, Zambon Jr D, Lopes LD. Tratamento ortodôntico em pacientes com fissuras lábio-palatinas. Rev Paulista Odontologia. 2000;22(2):4-10.

Mouradian WE. Deficits versus strengths: Ethics and implications for clinical practice and research. Cleft Palate-Craniofacial Journal. 2001;38(3):255-259.

Oliveira DFB, Capelozza ALA, Carvalho IMM. Alterações de desenvolvimento dentário em fissurados. Rev APCD. 1996;50(1):83-86.

Omote S. Atratividade física facial e percepção de deficiências. Dielática, São Paulo: 29:115-124, 1993/1994.

Paul T, Brandt RS. Oral and dental health status of children with cleft lip and or palate. Cleft Palate-Craniofacial Journal. 1998;35(4):329-332.

Spiri WC, Leite MMJ. Convivendo com o portador de fissura lábio-palatal: o vivencial da enfermeira. Rev. Esc. Enf USP. 1999;33(1):81-94.

Stobaus CD, Mosquera JJM. Educação inclusiva: um novo olhar sobre educação especial. Educação, Porto Alegre: 2000;23(42):129-142.

Strauss RP. “Only skin deep”: Health, resilience, and craniofacial care. Cleft Palate-Craniofacial Journal. 2009;38(3):226-229.

Thomas PT, Turner SR, Rum-Sey N, Dowell T, Sandy JR. Satisfaction with facial appearance among subjects affectedly a cleft. Cleft Palate-Craniofacial Journal. 1997;34(3):226-231.

WHO. Global strategies to reduce the health-care burden of craniofacial anomalies. Geneva, 2002. Disponível em: http://www.who.int/ncd/hgn/cfa8-anx.pdf. Acesso em: 18 abr. 2003.

Wiethaeuper D. Atratividade física facial e estigmatização em crianças portadoras de fissuras labiais. Porto Alegre, 1994. [Dissertação de Mestrado - Instituto de Psicologia, Pontifícia Universidade Católica do Rio Grande do Sul].

Downloads

Published

2003-12-19

Issue

Vol. 13 No. 2 (2003)

Section

Opinião/Atualização

License

CODE OF CONDUCT FOR JOURNAL  PUBLISHERS

 

Publishers who are Committee on Publication Ethics members and who support COPE membership for journal editors should:

 

Publishers should:

 

  • Define the relationship between publisher, editor and other parties in a contract
  • Respect privacy (for example, for research participants, for authors, for peer reviewers)
  • Protect intellectual property and copyright
  • Foster editorial independence

 

Publishers should work with journal editors to:

 

  • Set journal policies appropriately and aim to meet those policies, particularly with respect to:

–         Editorial  independence

–         Research ethics, including confidentiality, consent, and the special requirements for human and animal research

–         Authorship

–         Transparency and integrity (for example, conflicts of interest, research funding, reporting standards

–         Peer review and the role of the editorial team beyond that of the journal editor

–         Appeals and complaints

  • Communicate journal policies (for example, to authors, readers, peer reviewers)
  • Review journal policies periodically, particularly with respect to new recommendations from the COPE
  • Code of Conduct for Editors and the COPE Best Practice Guidelines
  • Maintain the integrity of the academic record
  • Assist the parties (for example, institutions, grant funders, governing bodies) responsible for the investigation of suspected research and publication misconduct and, where possible, facilitate in the resolution of these cases
  • Publish corrections, clarifications, and retractions
  • Publish content on a timely basis