Content validit and analysis of adherence to the use of the booklet “Orientações para a Manutenção da Qualidade de Vida – Espinha Bífida” in ambulator and non-ambulator children and adolescents with spina bifida
DOI:
https://doi.org/10.11606/issn.1679-9836.v101i5e-193651Keywords:
Physical exercise, Children, Adolescent, Spinal bifidaAbstract
Objective: From the production of a booklet of home exercises “Orientações para a Manutenção da Qualidade de Vida – Espinha Bífida”, the aim was to validate the content, carry out the evaluation of the material (booklet) by caregivers, and analyze the adherence to the use of the booklet. Methods: For content validation, 8 expert judges evaluated the booklet through an adapted questionnaire, and the content validity index (CVI) was established for each aspect addressed. In the evaluation of the material carried out by the caregivers and in the analysis of adherence to the use of the booklet, 10 children and adolescents with spina bifida participated in this study. The booklet was read with the patients and their caregivers, who were trained to perform the exercises that are in the booklet at home. After delivery, a face-to-face return was scheduled, in 15 days, so that caregivers could report on the evaluation of the material as well as describe the adherence of these participants to the use of the booklet. Finally, a second meeting was scheduled - follow-up - to analyze long-term adherence. Results: Of the 27 aspects addressed in the content validation, 24 of these received scores above the acceptable index (CVI = 1.00). Most caregivers answered “agree” or “strongly agree” to all items analyzed regarding the evaluation of the booklet. In the short term, there was an adherence rate of 25% of the participants, and in the long term, 12.5%. Conclusion: The booklet “Orientações para a Manutenção da Qualidade de Vida – Espinha Bífida” proved to be a great resource to increase the physical therapy treatment of children and adolescents with spina bifida, according to the evaluation of expert judges and caregivers, for presenting adequate content, language and appearance, but showed moderate/low adherence by the participants.
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Copyright (c) 2022 Camila Scarpino Barboza Franco, Emanuela Juvenal Martins, Gabriela Barroso de Queiroz Davoli, Danila Cristina Petian-Alonso, Karen Vitoria Recchia Pereira, Ana Claudia Mattiello-Sverzut
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Conselho Nacional de Desenvolvimento Científico e Tecnológico
Grant numbers 1346-2020