The metodology used in studies about repercussions of prematurity in the history of a family

Authors

  • Sylvia M. P. Pereira Instituto Fernandes Figueira; Universidade Federal do Rio de Janeiro
  • Maria H. C. de A. Cardoso FIOCRUZ; Instituto Fernandes Figueira

DOI:

https://doi.org/10.7322/jhgd.19773

Keywords:

Premature, Family, Intensive care unit, Neonatal, Quality of life, Qualitative research

Abstract

The objective of this study was to review how the literature focus impact of prematurity on the family and, at long-term, the impact on the child. We did so mainly focalizing the methodology used and the authors' area of work. The review was based on Medline and LILACS databases using the key-words: "premature, family"; "intensive care unit, neonatal"; "quality of life"; "qualitative research". Articles were selected from medical areas like Pediatrics, Psychiatry, Psychosocial Medicine and from other areas like Nursing and Human Sciences, published in the languages English, Spanish and Portuguese, within the last ten years and articles identified from the bibliographic references in the first articles. Postgraduate theses with most relevant information were gathered. Eleven articles were reviewed which employed quantitative methodology: structured and semi-structured interviews, approached by statistics tests like frequency distribution, chi-squared, logistic regression, covariance, and six studies, two postgraduate theses and four articles which have used qualitative methodology like not-structured interview, focus group interview, life history and participant-observation, approached by phenomenology, phenomenologic-hermeneutic method and thematic analysis. It was concluded that mostly studies boarding the impact of prematurity on the family use quantitative methodology in the area of Medicine, mostly Neonatology and Psychiatry. Qualitative methodology begins to be applied to these studies, mainly by professionals from other areas that Medicine. New research is necessary for the physicians, specially for Neonatologists to learn the specificity of qualitative methodology in generating meaningful information for studies about prematurity and family.

References

Green M. Parent care in intensive care unit. Am J Dis Child. 1979;133(11):1119-20.

O’Shea TM, Klinepeter KL, Goldstein DJ, Jackson BW, Dillard RG. Survival and developmental disability in infants with birth weights of 501 to800 grams, born between 1979 and 1994. Pediatrics. 1997;100(6):982-6.

Saigal S, Stoskopf B, Feeny D, Furlong W,Burrows E, Rosenbaum P, et al. Differences in preferences for neonatal outcomes among healthcare professionals, parents, and adolescents. JAMA. 1999;281(21):1991-7.

Vohr BR, Wrigth LL, Dusick AM, Mele L, Verter J, Steichen JJ. Neurodevelopmental and functional outcomes of extremely low weigth infants in the National Institute of Child Health and Human Development Neonatal Research, 1993-1994. Pediatrics. 2000;105:1216-26.

McCormick MC. The outcomes of very low-birthweigth infants: Are we Asking the Right questions? Pediatrics. 1997;99(6):869-76.

Rivers A, Caron B, Hack M. Experience of families with very low birth weight children with neurologic sequelae. Clin Pediatr (Phila). 1987;26(5):223-30.

Taylor HG, Klein N, Hack M. School-age consequences of birth weight less than 750g: are view and update. Dev Neuropsychol. 2000;17(3):289-321.

Msall ME Tremont MR. Functional outcomes in self-care, mobility, communication, and learning in extremely low-birth weight infants. Clin Perinatol. 2000;27(2):381-401.

Hack M, Flannery DJ, Schluchter M, Cartar L, Borawski E, Klein N. Outcomes in young adulthood for very-low-birth-weight infants. N Engl J Med. 2002;346(3):149-57.

Klaus MH, Kennell JH. Pais/Bebês: a formação do apego. 2aed. Porto Alegre: Artes Médicas; 1993.

Lamy ZC. Estudo das situações vivenciadas por pais de recém-nascidos internados em unidades de terapia intensiva neonatal [dissertação]. Rio de Janeiro: Instituto Fernandes Figueira da Fundação Oswaldo Cruz; 1995.

.Javorski M. Os significados do aleitamento materno para mães de prematuros em cuidado canguru [dissertação]. Ribeirão Preto: Escola de Enfermagem de Ribeirão Preto da Universidade de São Paulo; 1997.

Videla M. O bebê de alto risco: intervenções multidisciplinares. Anais do 8º Congresso Nacional da ABENEPI; 1987; Belo Horizonte. Belo Horizonte: ABENEPI; 1987. p.106.

Preyde M, Ardal F. Effectiveness of a parent“buddy” program for mothers of very preterm infants in a neonatal intensive care unit. CMAJ.2003;168(8):969-73.

Zeanah CH, McDonough S. Clinical approaches to families in early intervention. Semin Perinatol. 1989;13(6):513-22.

Ritchie SK. Primary care of the premature infant discharged from the neonatal intensive care unit. MCN Am J Matern Child Nurs. 2002;27(2):76-85.

Bowlby J. Cuidados maternos e saúde mental. 2ªed. São Paulo: Martins Fontes; 1988.

Raddish M, Merritt TA. Early discharge of premature infants: a critical analysis. Clin Perinatol. 1998;25(2):499-520.

Saigal S. Perception on health status and quality of life of extremely low birth weight survivors: the consumer, the provider, and the child. Clin Perinatol. 2000;27(2):403-19.

Minayo MCS, Sanches O. Quantitativo-qualitativo: oposição ou complementaridade? Cad Saúde Pública. 1993;9(3):237-48.21.Minayo MCS. O desafio do conhecimento: pesquisa qualitativa em saúde. 3ª ed. São Paulo: Hucitec-Abrasco; 1992.

Streiner DL, Saigal S, Burrows E, Stoskopf Rosenbaum P. Attitudes of parents and healthcare professionals toward active treatment of extremely premature infants. Pediatrics. 2001;108(1):152-7.

Holditch-Davis D, Bartlett TR, Blickman AL, Miles MS. Posttraumatic stress symptoms in mothers of premature infants. J Obstet Gynecol Neonatal Nurs. 2003;32(2):161-71.

Tommiska V, Ostberg M, Fellman V. Parenteralstress in familiares of 2 year old extremely lowbirth weight. Arch Dis Child Fetal Neonatal Ed.2002;86(3):161-4.

Singer LT, Salvator A, Guo S, Collin M, Lilien L, Baley J. Maternal psycohological distress and parenting stress after the birth of a very low-birth-weigth infant. JAMA. 1999;281(9):799-805.

Pierrehumbert B, Nicole A, Muller-Nix C, Forcada-Guex M, Ansermet F. Parenteral post-traumatic reactions after premature birth: implications forslleping and eating problems in the infant. Arch Dis child Fetal Neonatal Ed. 2003;88(5):400-4.

Hille ET, Ouden AL, Saigal S, Wolke D, Lambert M, Whitaker A, et al. Behavioural problems in children who weigh 1000g or less at birth in four countries. Lancet. 2001;357(9269):1641-3.

Saigal S, Burrows E, Stoskopf BL, RosenbaumPL, Streiner D. Impact of extreme prematurity on families of adolescent children. J Pediatr.2000;137(5):701-6.

Saigal S, Lambert M, Russ C, Hoult L. Self-esteem of adolescents who were born prematurely. Pediatrics. 2002;109(3):429-33.

Denzin NK. The research act: a the oretical introduction to sociological methods. Englewood Cliffs (NJ): Prentice-Hall; 1989.

Chizzotti A. Pesquisa em ciências humanas esociais. 4ª ed. São Paulo: Cortez; 2000.

Gaiva MAM. Cotidiano de escolares nascidos prematuros: percepção de crianças e familiares [dissertação]. São Paulo: Escola de Enfermagem de Ribeirão Preto da Universidade de São Paulo; 1997.

Nystrom K, Axelsson K. Mother’s experience of being separated from their newborns. J Obstet Gynecol Neonatal Nurs. 2002;31(3):275-82.

Stone L. O ressurgimento da narrativa: reflexões sobre uma nova velha história. Rev História Univ Campinas. 1991;213:13-46.

Bialoskurski M, Cox CL, Hayes JA. The nature of attachment in a neonatal intensive care unit. J Perinat Neonatal Nurs. 1999;13(1):66-77.

Cox C, Bialoskurski M. Neonatal intensive care: communication and attachment. Br J Nurs.2001;10(10):668-76.

Jackson K, Ternestedt BM, Schollin J. From alienation to familiarity: experiences of mothers and fathers of preterm infants. J Adv Nurs.2003;43(2):120-9.

Downloads

Published

2005-12-01

Issue

Vol. 15 No. 3 (2005)

Section

Current Comments

License

CODE OF CONDUCT FOR JOURNAL  PUBLISHERS

 

Publishers who are Committee on Publication Ethics members and who support COPE membership for journal editors should:

 

Publishers should:

 

  • Define the relationship between publisher, editor and other parties in a contract
  • Respect privacy (for example, for research participants, for authors, for peer reviewers)
  • Protect intellectual property and copyright
  • Foster editorial independence

 

Publishers should work with journal editors to:

 

  • Set journal policies appropriately and aim to meet those policies, particularly with respect to:

–         Editorial  independence

–         Research ethics, including confidentiality, consent, and the special requirements for human and animal research

–         Authorship

–         Transparency and integrity (for example, conflicts of interest, research funding, reporting standards

–         Peer review and the role of the editorial team beyond that of the journal editor

–         Appeals and complaints

  • Communicate journal policies (for example, to authors, readers, peer reviewers)
  • Review journal policies periodically, particularly with respect to new recommendations from the COPE
  • Code of Conduct for Editors and the COPE Best Practice Guidelines
  • Maintain the integrity of the academic record
  • Assist the parties (for example, institutions, grant funders, governing bodies) responsible for the investigation of suspected research and publication misconduct and, where possible, facilitate in the resolution of these cases
  • Publish corrections, clarifications, and retractions
  • Publish content on a timely basis